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Cluster Headache Counseling

I have lived with cluster headache for more than 20 years myself — and I know no one should go through this alone.

Stefan Kohlweg, MSc. Not medical advice. Not psychotherapy. One-to-one online counselling for patients and their families.

Portrait of Stefan Kohlweg, himself a cluster headache patient
Cluster headache symbol

What are cluster headaches?

Cluster headache is one of the most severe known pain disorders

Often called the "suicide headache", it manifests in extreme, one-sided attacks around the eye or temple that occur in periods (clusters). The intensity is almost impossible for outsiders to imagine and severely affects every area of life. Sufferers struggle not only with the pain itself, but also with its unpredictability and the psychological strain. Relatives usually have to watch helplessly as their loved ones suffer, at a loss as to how best to help.

Illustration representing support for cluster headache sufferers

Support for sufferers

You are not alone. The unbearable pain attacks, the dread of the next one, and the exhaustion – cluster headache challenges you on every level. But there are ways to cope with it.

  • Understanding and space for your experience
  • A joint search for coping strategies
  • Psychosocial support
  • Resources & professional help
  • Support in reaching your goals

Discover how you can shape your life more actively.

Information for relatives

Watching a loved one suffer is hard. Helplessness and worry are often constant companions. But there are ways you can offer support.

  • Well-founded information for a better understanding
  • Strategies for effective support
  • Orientation and practical tips
  • Impulses for essential self-care

Discover how you can help while taking care of yourself.

Illustration representing guidance for relatives of cluster headache sufferers
Counselling icon

Counselling

Individual support for you

Cluster headache confronts you and those around you with immense challenges. The unimaginable pain attacks and the constant uncertainty can dominate your life and derail both professional and personal plans. I understand that – from my own experience and from many conversations with fellow sufferers through the association.

In my counselling I offer you a protected space and concrete support:

  • Together we develop strategies for coping with the pain and with the fear of the next attack.
  • I show you ways to manage everyday life and work despite the illness, without losing sight of your goals.
  • Together we strengthen your personal resources and build your resilience.

I also support relatives in understanding the situation better, offering effective help while not neglecting their own self-care. Here you will find professional guidance and practical solutions for a life with more control and confidence. All counselling takes place online and is built around maximum flexibility.

What I offer is psychosocial support. It works alongside your neurologist – it does not replace medical treatment or psychotherapy.

You pay only for the minutes we actually use. If a session ends after 43 minutes, that is all you are charged for.

Frequently Asked Questions (FAQ)

Contact

How would you like to take the first step?

Do you have questions, or do you sense that a first conversation might do you good? Please do not hesitate to get in touch. Your message is safe with me and treated in absolute confidence.

Portrait of Stefan Kohlweg, Cluster Headache Counselling

Stefan Kohlweg

Cluster Headache Counselling

This counselling is not a crisis service. If you are in acute distress or in immediate danger, please contact your local emergency services or a crisis line in your country right away.

Or write to me directly: [email protected].

There are no “right” or “wrong” concerns. A brief appointment request or general question is enough. I will answer you as soon as possible, and we can then discuss in peace how to proceed.

I am:

A request for an appointment or a general question is enough for the initial contact. Please do not send diagnoses, medical reports, medication lists or other people’s health information. We will clarify how sensitive details can be shared before counselling. Acknowledging the privacy policy is not explicit consent to process health data.

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Free, non-binding and confidential — at your own pace.

Psychosocial counselling only — not medical advice, not psychotherapy. In a crisis, contact your local emergency services.

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Cluster Headache Counselling Vienna – Psychosocial Support Online | Clusterberatung EN