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About Me

Patient since age 18. Counsellor by choice.
MSc psychosocial counselling — online, one-to-one.

Portrait of Stefan Kohlweg

I have been a cluster headache patient since I was 18

"First attack during military service. I had no idea what it was."

For five years I had no diagnosis: doctors, dentists, wrong treatments. At 23 a neurologist finally named it — cluster headache. Until then I thought I was going mad.

Episodes came every six months, then every three, then every two. Eventually every night. Sleep deprivation, isolation, and the complete unpredictability that anyone with cluster headache knows too well.

In 2022 I hit a point where I understood the term “suicide headache” from the inside. That experience pushed me to train as a counsellor — not despite the illness, but because of it.

Why I trained

I finished an MSc in psychosocial counselling at Sigmund Freud University Vienna. The degree added structure and method to what I already knew from living with this condition. Now I work online, one-to-one, with patients and their families.

How I got here

Patient first. Counsellor second. The order matters.

Age 18

First symptoms

The onset during my military service. Sudden, devastating pain.

Age 18-23

The Search

Undiagnosed phase. Wrong treatments, sleep deprivation and self-help strategies.

Age 23

The Diagnosis

Finally a name: Cluster headache. The invisible became visible.

Age 35
2022

The Turning Point

Extreme episode and trauma insight. The decision to turn pain into strength.

Today

MSc & Research

Degree in counseling science, building a network and specialized research on online spaces.

Profile & Expertise

Lived experience

  • Cluster headache patient since age 18
  • More than 20 years with it — five of them undiagnosed
  • Knows the attacks, the fear, the recovery

Qualifications

  • MSc Psychosocial Counselling (Sigmund Freud University Vienna)
  • Registered psychosocial counsellor (Austria)
  • Research focus: online counselling settings

Credibility

  • Member, Clusterverein Österreich
  • Contributor, MHIPAS Brussels cluster headache project
  • WKO Impuls Pro quality standard

What this means for you

I know cluster headache from two sides: as a patient and as a trained counsellor. What I offer is psychosocial support — online, one-to-one. It is not medical advice and it is not psychotherapy. It is the part that sits alongside your neurologist, not instead of them.

Practical coping

Strategies for the fear of the next attack, for sleep, and for the days when you are running on empty.

Real context

You do not have to explain what an attack feels like. We can use that time for what actually helps.

Fair billing

You pay only the minutes we actually used. No padding, no rounding up.

Psychosocial counselling only — not medical advice, not psychotherapy. In a crisis, contact your local emergency services.

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About Me – Stefan Kohlweg, Cluster Headache Counsellor | Clusterberatung EN